Thursday, June 30, 2011

Looking For Some Help

I'm looking for some advice here:

Now that I'm living in St. Louis I need to find a doctor who can help me with this whole Fibromyalgia thing. The physical med doc I saw at Mayo suggested I see an internist but I am quite sure my complicated medical situation is going to require someone with more specific knowledge of Fibro and intractable migraines. The migraine specialist I am seeing at Mayo made it clear that he won't assist in anything that is outside of the migraines.

From everything I've read so far about Fibromyalgia the treatments often overlap with migraine preventatives and associated treatments. Ideally I could find someone who can help with both, or who is at least willing to work with another doc to coordinate my care. It is all so new and I just don't even know where to start.

I thought maybe you ladies who have Fibromyalgia might be able to give me some advice. What kind of doctor should I be looking for (Neuro, physical med, endocrynologist?)? Have any of you found someone who can help with both? Have any of you had a doctor in the st louis area that you liked? If so, who?

Any thoughts, observations, advice or the like would be appreciated.


  1. I'm in St. Louis too! I see Dr. Sandra Hoffman who is an Internist/Rheumy. Be prepared to wait if you see her, but I like her a lot.

  2. I should have added that I have Fibromyalgia too. Welcome to STL. Where abouts are you living? I'm in the South County area.

  3. A rheumatologist is a good place to start. He/she can prescribe meds for this. They are also considered the fibro specialists. I wish I knew back then what I know now! I could have saved myself a lot of agony I think.

    I hope you find a great doctor soon!

  4. Welcome to St. Louis!!! How are you liking our fair weather?

    I have a Rheumatologist, but it was my migraine doc who Rx'd me with Fibro, and put me on Neurontin for treatment of both. The docs at Ryan Headache Center off of Olive would also likely do the same, as they were first and foremost MDs who went into headache medicine with continuing education. I no longer see the docs there but I travel to the Headache Care Center in Springfield, MO, whose doctors are of the same nature. I am not familiar with the Mayo docs but I'm not surprised they said they would not help with both, and I'm not sure I like that attitude as sometimes once you treat one disorder you will wrangle another under control. Best of luck to you and I hope you enjoy St. Louis!