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Thursday, April 21, 2016

Further Endometriosis Trouble

Well yesterday was a total loss. I spent the entire morning at the doctor's office and more than an hour on the road home due to a bad traffic jam on the highway. I've had a big increase in bleeding and pain and the doctor isn't sure why. She took a biopsy and I've been scheduled for an ultrasound. It may be a few weeks before I know anything. She also took me off the hormone pills I was taking and switched me to a quarterly injection instead.

I spent the rest of the day laying on the couch - exhausted and in lots of pain. The pain then woke me up in the middle of the night and has been getting worse as the morning goes on. I think I'm about 4 hours away from needing an actual pain pill.

Whatever is going on has triggered a migraine that doesn't respond as well to my usual rescue meds, my legs are in a nasty fibro flare and yet the squeaky wheel is this endometriosis or whatever it is. My periods were growing increasingly painful for about a year until it the pain become incapacitating in August and September. The one is September landed me in the ER. I told my doctor I never want to have another period again. I just can't manage the pain without serious painkillers and that is not acceptable.

When it comes down to it, I've become terrified of my cycle. I don't understand why my body is torturing me the way it is and I wish stopping it wasn't so complicated.

4 comments:

  1. i'm in a really similar boat, and I have an appt today. I hope we both find solutions! <3

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    1. Good luck with your appointment Steph!

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  2. There are some really good support networks for Endo on facebook, one in particular spends a lot of time on the research.

    I also have a nasty history with Endo, and the best outcomes really come out of having surgery with an Endometriosis Specialist. Like you I would develop breaking through bleeding on the pill and after awhile it would stop working all together. A solid surgeon can go in and remove the Endo lesions and greatly lower the risk of them coming back. https://www.facebook.com/groups/endometropolis/

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    1. Thank you so much Syn Eccentric! I will check out this group.

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