It's all so exhausting. All this being actively engaged in treating chronic migraines, not to mention the actual living with chronic pain. I don't know that people really understand just how exhausting chronic pain is, the toll it takes on us both physically and mentally. It's exhausting! Then you have to deal with the doctors, the appointments, the research, trying to explain things to family and friends, trying to manage all the things that you need and want to get done but never have enough energy to do, manging triggers...one never really escapes it. It's exhausting!
Sometimes I just wish I could take a vacation from it all. Maybe a month with no pain and none of the constant management of my conditions, no medications or special accommodations. Sounds greedy, doesn't it? A whole month of getting stuff done and having fun without paying a price or having it ruined by pain, brain fog, nausea... Gosh, that would be so wonderful.
Okay, but the reality is that constant vigilance and effort is required. I need to stay actively engaged in my treatment or I'll be in worse shape than I'm in now. Yikes!
I just wish it wasn't all so exhausting.