Pages

Wednesday, July 10, 2013

Dental Care and #Migraines

Dental care has become tricky business for me since the onset of my chronic migraines. Okay, I need to back up a bit here. See I had the same dentist in my hometown of Rochester, MN my entire life. The same dentist, the same hygienist, the same great dental care in a very small private practice. Dental care was never a worry. Shortly after my migraines went chronic, hubby and I moved far away, and then moved again, and then moved again, and then moved again.

Each move forced me to seek my dental care from absolute strangers. I had no way to know who was any good and ended up just randomly picking dentists. It never worked out so I never went to the same dentist twice.

Each move found me deeper into my chronic migraines. I was constantly trying new preventative medications and taking muscle relaxers and my rescue meds. Between all these pills my mouth became a very dry place and cavities followed. I would show up at a dental office and tell them about my migraines and all the medications and how crazy dry my mouth was. The trouble was that during the day, on a day when I'm not taking rescue meds, my mouth isn't terribly dry. Most of my preventative meds along with my muscle relaxers were taken at night so that's when most of the damage and discomfort was occurring.

The dentist and the hygienist would look in my mouth and see a pretty normal environment. I would then get the condescending talk about how I need to cut back on sugar and brush better. Of course, they made these blanket suggestions without ever having conversations with me about my diet or brushing habits, where they could have actually learned that this clearly wasn't the issue.

I would ask specifically what I could do about the dry mouth and then I would hear them whispering behind me about how my mouth isn't dry. They obviously didn't believe me and just brushed off my concerns. Meanwhile, they're shining that obnoxious light in my face, scraping with too much force and generally not taking my pleas for gentle care into consideration. Hello migraine.

It was like something out of Little Shop of Horrors:


So here is where things get kinda cool.

I was at the dentist this past December. At the time I didn't have dental insurance but did have 3 or 4 small cavities that, because I wasn't insured, the dentist said he wanted to watch but would probably need to fill next time. In February, as part of my efforts to cut back on the chemicals I use, I started using a remineralizing toothpaste and activated charcoal instead of store bought toothpaste. I used them for about 2 months but ended up stopping because the brown color of the remineralizing toothpaste combined with my electric toothbrush made for a messy sink.

In June, armed with dental insurance, I found a new dentist. First off, let me just say that this is the best dentist and dental office I've ever seen. Instead of those horrible bright lights they used small concentrated lights attached to a magnifying eye gear sort of like surgeons use. They gave me big shades to wear that blocked light from all directions while they were using their lights in my mouth. They were super gentle and respectful of my pain. Best of all they believed me when I spoke about my dry mouth. Both the dentist and the hygienist took the time to really talk with me about exactly what I'm doing and how I might be able to manage my symptoms betters. It was a conversation, a partnership. I never knew dental care could be this great.

The old dental office failed to send my x-rays from December but since I was newly insured the new dentist was able to take new ones. Much to my surprise the new x-rays didn't show any signs of cavities. If I hadn't seen both sets of x-rays with my own eyes I would have just figured the first dentist was lying about my cavities. That just wasn't the case. Now I can't prove that the remineralizing toothpaste and activated charcoal took care of my cavities but that was literally the only difference in my dental routine.

I'm thrilled to have found such a great dentist and relieved to have found this remineralizing toothpaste that, hopefully, will continue to help me avoid future cavities. I've decided to start using it once a week as a prophylactic.


Tuesday, July 9, 2013

The Battle Rages On



If you've been following me for the last several months you know that my daily battle with chronic migraines and fibromyalgia has a new nemesis: Express Scripts. They have made filling my prescriptions needlessly complicated and endlessly frustrating  Not to mention they have managed to screw up every single step of the way. I'm grinding my teeth and shaking my fist just thinking about it.

Surprise, surprise, they have managed to take their incompetence to a whole new level. They sent me a letter listing the medications I have filled in the approximate 3 months that they have been my prescription provider. The letter then went on to make the observation that I have migraines and suggested that I think about discussing some preventative medications with my doctor.

As if it wasn't bad enough that this Johnny-come-lately has the stones to make this incredibly uninformed suggestion about my medical care, the list of medications I had filled with them included two migraine preventative medications. They don't even know which medications are used to prevent migraines!!

HEY EXPRESS SCRIPTS,
Clearly, just filling prescriptions is more complicated than you can manage. You certainly have no role to play in my medical care! Stay the f*&% out of it!


Monday, July 8, 2013

July #Migraine Blog Carnival

The July Migraine Blog Carnival is now available. This month's topic is all about Traveling Tips for the migraineur. Check out all the great tips.

Thursday, July 4, 2013

Traveling With #Migraines


The word vacation is supposed to evoke images of beautiful locations, amazing meals, fun and relaxation. With limitless possibilities, the vacation is supposed to be the regularly scheduled reward for all the hard work of daily life. That image of vacation sounds like something everyone could benefit from.

The thing is, I can't say that I've ever been on a vacation like that. Vacations are stressful, and that's before you ever even think about adding the many complicating factors imposed by chronic migraines. You have to pack everything you will need and drag it along with you. You have to either drive or fly to some location. You have to pay out the nose to stay in some hotel and to eat every meal out. You are living out of a suitcase. You are on vacation so you have to go around and have fun - let's hope the activities you choose are fun because that is the expectation.

I remember seeing a news report recently that cited the anticipation of a vacation as more enjoyable than the vacation itself. The actual vacation has little hope of living up to the crazy expectations imposed on us by the travel industry and ourselves. The brochures, the advertisements, the websites, facebook photos of our "friend's" trip...they all paint a picture of perfection. A world where nobody gets food poisoning, luggage is never lost, bed bugs don't exist, a tiny bottle of water doesn't cost $5, you know, perfect.

Since the onset of my chronic migraines my husband and I have been on three short vacations in addition to several trips to visit family. What I've come to realize is that I no longer enjoy vacations. I hate being away from home because traveling ALWAYS destroys my routine. Everything becomes harder; sleeping, eating (further complicated by being a vegetarian), staying hydrated, pacing myself, treating my migraines and managing the plethora of symptoms. I don't have the energy to make the most out of any vacation because I can only do so much in one day. Frankly, I just can't justify the expense of vacationing in my condition.

Traveling to visit family is different. It's one of those things that needs to be done. My mom and sister live about an eight hour drive from here and so travel we must. Here are some of the things I do to try to enjoy myself as much as possible on these trips:

1. Take our dog Gypsy with us. My mom's house is a super dog friendly place so thankfully she is welcome. Having her around is a good stress reliever and actually helps me to maintain some sense of routine.
2. Planning time to see old friends. Talk about doing something great for the soul. Nothing like sitting in front of dear old friends to make a gal feel great.
3. Remembering that there is great fun in some really simple activities can help me to avoid getting involved in things that will overtax me. Sitting around and talking, playing games, having a fire pit, a meal...these are good ways to have quality fun with loved ones. Suggesting these kinds of activities usually works.
4. Always remember to take all my migraine gear; medications, hat, shades, comfortable clothes, water bottle, etc. Thankfully my mom makes provisions for me as well, like room darkening curtains she puts up before we arrive.

I'm still holding onto a hope that I'll get better at managing my symptoms in general and that traveling won't be so difficult in years to come.

Wednesday, July 3, 2013

Whimsy Wednesday


Babies and kitties - what more do you need to make you smile? Have a great day!


Tuesday, July 2, 2013

How Migraines Impact Our House Hunt

We're house hunting. I love house hunting. I love looking at pictures online, going into homes, seeing different decorating styles and trying to picture my family in the various homes. We've been waiting and saving to buy another house for years. Between all the moving around and living in crap apartments with even crappier neighbors has just made the hunting feel even sweeter.

Surprise, surprise, my chronic migraines and fibromyalgia have sucked a lot of fun out of the process. Here are some of the complicating factors:

1. We are looking to buy a house in South St Louis County, which is about a 30 minute drive from our present location so we are spending a great deal of time on the road just getting to that part of town and then tooling around to see the houses. The driving about is hard on my neck, which triggers my head. Plus, there is a lot of sunshine and heat to contend with this time of year.
2. While I enjoy going in the houses and such, we've seen a lot of stinky houses. Sometimes I'm the only one who can smell the underlying cat pee, which makes me feel a little crazy. Some of the smelly houses have been very overt and then I'm just sad that we're missing out on a great house because the present homeowners are heavy smokers or have not addressed the stinky urine soaked carpets/pads/subflooring.
3. The stress of the rising interest rates and huge increase in homebuyers have made me more sensitive to all my triggers.

It's been a tough month of house hunting. Especially after we lost out on a bid for the perfect house over the weekend. At this point I'm over it. House hunting can be fun but a long house hunt is just not good for this Migrainista. I need it to come to an end so we can move forward in the buying process. Fingers crossed that we'll find the perfect place tomorrow.

Monday, July 1, 2013

My First Dream Migraine

I had a chronic migraine first during the month of June: my first migraine IN a dream. I do frequently fall asleep with migraine pain, wake up with migraine pain, heck, I'm sure I've even had pain while dreaming. But I had never actually dreamed that I was having the migraine. It was so real. I was experiencing the pain, aware of the pain and it played a big role in the activity of the dream just as it does in real life.

Now I know, migraines are such a big part of my life it shouldn't have been as jarring or surprising to dream that I was having a migraine. But it was.

Normally, sleep and dreams are a bit of an escape for me. A time during which I don't have any awareness or thoughts of chronic pain. A time filled with hope that the next day won't be as bad. A time to do really cool stuff like fly around beautiful buildings and see the world from a bird's perspective. Having that time invaded by migraines was just unsettling.

So far I've only had the one dream migraine. Now if I can convince my brain to never do that to me again, I'll be a happy camper.

Have you ever had a dream migraine?