Wednesday, October 6, 2010

Disappointing Day

It took almost 2 hours to make the 20 mile trip into the heart of DC and that was without rain. Thankfully it didn't rain. Can you imagine what that would have done to the trip? Anyway, we made it and I got my handful of minutes with the doctor.

You can't imagine my extreme disappointment when he told me he doesn't think what's going on with my jaw is contributing to my migraines. He says my disc is displaced and that it is very common. Sometimes causing pain and sometimes not. I don't understand. My jaw and head pain always go hand in hand. When I have a bad migraine I have a super painful jaw and vice versa. Neither ever happens alone. How can the jaw have nothing to do with it?

I'm crestfallen and want to just cry. Of course I can't because it hurts too much to cry. I'm not sure what to do next. I was so positive addressing this jaw issue would provide me some relief. I don't want this to be my life. What else could it be? Honestly, what else could it be? None of the preventive medications have worked. Doesn't that have to mean there is something else contributing? Oh this is so frustrating! I want answers and every time I turn to another idea I come up empty.



  1. Dear one. I am frustrated for you. I understand wanting answers and never finding any.

    I'm sorry... you might've mentioned this in another post, but has a dentist diagnosed you with TMJ or anything? Perhaps there could be a treatment option from that point.

    You're not alone. It's a frustrating thing to not know what or why. You will be in my thoughts and prayers. Blessings.

  2. I am so so sorry you didn't get a good answer. It is soooo disappointing...but better to know now rather than later.

    I have severe facial pain with my headache. It gets better and worse as the headache waxes and wanes. Sometimes it makes my teeth hurt too. Don't know why.

    My headache specialist says that one of the reasons Botox helps some people's headaches is that it stops these superficial nerves from putting out an enzyme that signals the brain to start the migraine "cascade", but it is still speculative why it works on some and not others. I am not willing to put out the $$$ just to try it out to see if it works since insurance won't cover it.

  3. I am so sorry about the doctor visit. What a disappointment. There has to be an answer out there somewhere. Keep looking! There has to be a doctor out there that can help you. There just has to be.

  4. Oh no. I'm so sorry to hear this. How frustrating. I watched a program the other night called "The Empowered Patient" with Elizabeth Cohen. One of the things she stressed was how hard it is to keep looking for answers when all the doctors shrug and say "I dunno". She said the most important thing is to take some time to regroup and then get back out there and look for someone or something else that might help you.

    Never give up. There has to be something out there to help you. In the meantime, I'm glad you can sleep.

  5. You need your own Dr. House, too. The right doc is out there, you just have to find him. Keep looking!