Monday, November 14, 2011

Fibro Confusion

One thing I've noticed about my Fibromyalgia is that the biggest problem area tends to migrate around. Sometimes my arms and hands give me a lot of trouble, sometimes my legs and feet. Other times fatigue is my biggest issue and other times it is my ability to concentrate. Well you get the point.  Does this happen with any of you?

I feel like this aspect of the Fibromyalgia is both a blessing and a curse. A blessing because I bet it would be worse to have to cope with everything being really bad all at once. A curse because sometimes it makes me feel like I'm going mad. I can't seem to fully wrap my mind around my condition at any given moment because as soon as I think I'm understanding a symptom my symptoms change.

I feel like it is making it more difficult to manage my symptoms too. Hopefully this will cease to be an issue once I have integrated all the changes on my Road to Wellness. Gotta have hope, right?


  1. Yes, somedays my arms and hands are a bigger issue than the legs and feet and other days it is the opposite. For my legs and feet it really depends on what type of chair I sit on. For example at church I have to lean and 1/2 sit on a stool during the choir singing. This most of the time causes my legs and feet to go numb. If I am using my computer and it is in a specific angle, this can cause my hands and arm to go numb or ache more. My hips ache all the time, but that is mostly because of arthritis, not the fibro. That is the one thing with fibro, it will change from day to day. I am not sure why, but it does. I do hope the Road to Wellness plan works for you. So far, I have yet to really find something the eliminates all the symptoms. I do manage them pretty well though so they are always out of control. I think that is the name of the game. Controlling the symptoms. I have a lot of issues with Fibro fog too


  2. Knock wood real fast! It CAN envelope your entire body...ask me how I know. It is good to have hope! Hope and positive thinking (most of the time) is what gets me through it. I know you can do it, too!

  3. Does this migrating pain happen to any of us?, you ask. Can you see my hand waving at you-pick me, pick me. Yes, it is unbelievable how one day I can’t hold a spoon and two days later I am unable to put weight on one or the other hip. The chronic low back pain I have learned to deal with but Ding Dang the other tingling, aching, piercing, throbbing, sharp, sudden, fleeting, persistent.... I am worn out fighting for a decent day just once or twice a week.

    You are not alone at all in this chronic illness, auto-immune miasma. I advise you to keep a daily pain journal: migraines, pain and tingly spots, ability to walk, eat, cook, shop, do your household. Keeping a journal may begin to feel like a whiny-novel and you may get discouraged. Try to soldier on, you will need the documentation when you try for disability or meet a specialist or a new general doc. The dentist should also know what’s happening.

    When my hands got too bad to floss effectively my dentist actually Gave me an electric toothbrush “to make my job easier” she said, as she scraped plaque off my molars.

    Yes, have hope for sure, but keep good records nonetheless.